Towards the assessment of financial distress among cancer patients: a conceptual model of the financial effects of a tumour disease
OncologiaResumo original em inglês
O que aconteceu
A conceptualisation of subjective financial distress as a consequence of a cancer diagnosis and treatment is still missing due to a lack of a comprehensive model accounting for all relevant dimensions of financial effects of cancer experienced by patients. Our goal was to derive a model for the German healthcare system to shed light on the complex process of financial effects of cancer.
The model was developed through systematic literature review and qualitative studies, including interviews with 18 cancer patients and a focus group with 4 social services representatives. The iterative process of model development was accompanied by an ongoing exchange in the interdisciplinary research team.
NCT05319925 (registration date, 2022-06-01).
O que encontraram
The developed model of financial effects of cancer experienced by patients consists of three dimensions: (1) actual and anticipated financial disadvantages, (2) behavioural and cognitive coping strategies, and (3) subjective financial distress conceptualised as negative effects in different aspects of daily living: employment, living situation, family, social participation, health promoting lifestyle, additional personally preferred treatments, navigating the health system, and a further area so-called unspecific.
Por que isso importa
Subjective financial distress is driven by different financial effects of cancer experienced by patients and is perceived as negative in various aspects of daily living. While the identified categories of daily living can be observed in countries with universal healthcare coverage, the content and degree of each subcategory depend on country-specific characteristics. The introduced model can be used to inform the development of a new patient-reported outcome measure (PROM).
Resumo publicado sob licença CC BY. A tradução para o português ainda não chegou a este estudo.
O estudo original
Towards the assessment of financial distress among cancer patients: a conceptual model of the financial effects of a tumour disease
Sophie Pauge, Andrea Züger, Luise Richter, Viktoria Mathies, Bastian Surmann, Thomas Ernst, Natalja Menold, Wolfgang Greiner, Eva C Winkler, Katja Mehlis
Descritores MeSH
- Neoplasms
- Financial Stress
- Activities of Daily Living
- Adaptation, Psychological
- Adult
- Aged
- Female
- Germany
- Humans
- Male
Veja também
Estudos relacionados
- Toxicidade financeira entre cuidadores familiares de pacientes adultos pediátricos, adolescentes e jovens com câncer: uma meta-síntese qualitativa
- Toxicidade financeira entre famílias de crianças com câncer: revisão sistemática qualitativa e metaagregação
- Associação entre estratégias de enfrentamento e achado de benefícios em pacientes adultos com câncer: uma meta-análise
- Experiências psicológicas relacionadas ao medo em pessoas com doença de Parkinson: revisão sistemática de estudos qualitativos